Resources

National

Resources Introduction

The DementiaWeb Oxfordshire site is arranged to make it easy to access dementia related information and services available nationally and locally. This page introduces some other resources that you might like to make use of.

Research

The Alzheimer's Research Trust is a registered charity conducting research into dementia: www.alzheimers-research.org.uk.

The Alzheimer's Society is a registered charity which funds research into the cause, cure, care and prevention of dementia, http://alzheimers.org.uk/

The DSDC at Stirling University, Scotland also has offices in London and Belfast and has an international reputation for design and dementia, http://dementia.stir.ac.uk/

The DSDC at Bangor University is the main Welsh site and produces a journal called Signpost, http://www.bangor.ac.uk/imscar/dsdc/

The DSDC at Canterbury Christ Church University in Kent comprises a partnership between the university, the Avante Partnership and Dementia UK, the charity which created Admiral nurses, http://www.dementia-uk.org/

The DSDC London is part of the University College of London, http://www.ucl.ac.uk/dementia/

The Bradford Dementia Group is part of Bradford University and is the home of Dementia Care Mapping, http://www.brad.ac.uk/health/dementia/

Trent DSDC is in Leicester and manages an information resource on assistive technologies for people with dementia, http://www.trentdsdc.org.uk/

DeNDRoN: Dementia and Neurodegenerative Diseases Research Network, http://www.dendron.org.uk/rn/tv.html

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Dementia Books Online

There are numerous books about dementia. Check out the 11500 records of published materials about all aspects of dementia care and research- including books, journal articles, videos/DVDs and dementia care training resources. In the Alzheimer's Society Dementia Catalogue: www.alzheimers.org.uk

Here are two very different books, written 12 years apart, with a very similar message;

'Dementia Reconsidered' by Tom Kitwood. The late Prof Kitwood wrote this ground breaking book which was published in 1997.

Alzheimer's Society

The Alzheimer's Society is the UK's leading care and research charity for people with dementia, their families and carers. Becoming a member of the Alzheimer's Society is a great way to keep up to date with developments in the dementia field, and hear how other people manage living with dementia. Society Members regularly receive a free copy of the excellent "Living with Dementia" magazine through the post. The Alzheimer's Society offers free membership to carers and people with dementia: simply tick the box for this on the membership application form.

The Alzheimer's Society also produces a range of publications to enable care homes, and other providers, to promote good practice in dementia care.

Emergency Duty Team

The Emergency Duty Team (EDT) provides a countywide emergency out-of-hours and weekend contact for Oxfordshire Social & Community Services on 0800 833408.

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NHS Direct

If you are unsure about whether something needs medical attention, or would like general health advice, you may find it useful to visit the NHS Direct website.

The NHS Direct website is part of the National Health Service, and aims to provide high quality health information and advice.

If you are feeling unwell you can telephone NHS Direct on 0845 4647 for individual advice and information, given by nurses, 24 hours a day.

Local

'Contented dementia' by Oliver James. This 2009 book describes the work of SPECAL (Specialised Early Care for Alzheimer's) a person-centred dementia care charity undertaking ground-breaking work with older people who have dementia of the Alzheimer's type.

Books for Carers 

Oxfordshire Library Service has put together a collection of books to help people who are looking after someone at home.

The books include:

• Coping with being a carer
• Alzheimer's & dementia
• Looking after yourself
• Age-related illnesses
• Others' stories
• Things to do, such as picture books for adults, short story audio books, poetry and books to read aloud, crafts and activities to try

You can find the Carers Collection booklist on: www.libcat.oxfordshire.gov.uk or www.oxfordshire.gov.uk/Libraries then click on Library Services and then on Reading Lists.

You can request any books on the Library Catalogue online using the PIN  for your ticket, by phone or in person in any library.

If you need more information please ring 01993 703659 or  email anney.blake@oxfordshire.gov.uk

 

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Interpreters and Translation

Alzheimer's Disease International has an extremely helpful web page, of contact details and web links for Alzheimer associations in around 75 different countries around the world. This information is likely to be useful for people living with dementia in Oxfordshire whose first language is not English, and also useful for people who live locally, but have friends or family members living with dementia abroad.

Further information about local support for people from ethnic minorities is available on our local support page.

Resources for Children and Teenagers

A number of resources about dementia and/or caring, aimed specifically at children and teenagers are linked to from our children and young people page.

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YoungDementia UK

YoungDementia UK formerly known as The Clive Project was established in spring 1998 to develop and provide a range of integrated, specialist and flexible services for younger people with dementia and their families in Oxfordshire. Read Clive's Story on the YoungDementia UKs' website.

People supported by YoungDementia UK include:

• People under 65 years of age at referral with dementia: active individual support sessions, through the YoungDementia UKs' One-to-One service.
• Family and friends of people with the young onset of dementia: information and emotional support through individual and group sessions.
• Anyone affected by young onset dementia: social events including club and cafe.

YoungDementia UK has an open referral policy, so anyone can make contact.

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Age UK

Age UK Oxfordshire City & County

Age UK Oxfordshire is an independent local charity and, along with other local Age UKs, is a member of the Age UK Federation. Services are tailored to meet the needs of people over 50 in Oxfordshire, and include:

• Flexible Care Scheme
• Specialist Day Centres
• Sole Mates Footcare
• Co-op Home Shopping
• Help with Form Filling

More details of these and other services provided can be found on the Age UK Oxfordshire website.

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Social and Community Services

Social & Community Services is the new name for Social and Health Care (S&HC) in Oxfordshire (also formerly known as Social Services).

The Access to Information Services Team in Oxfordshire

This Team handles all initial enquiries, and requests for Social & Community Services assessment, for adults over the age of 18. Anyone can make a referral to the Access to Information Service Team: this does not have to be done by a professional.

There are three Adult Assessment Teams in Oxfordshire, who take referrals on from the Access to Information Service. They provide Assessment, care planning and review over a two month period, following initial contact.

If need is urgent (e.g. there is serious threat to personal safety), a care manager or social worker will normally visit within 24 hours. Otherwise assessment should be completed within four weeks.

Anyone who is unsure of which team to contact should contact the customer services unit, on 01865 375515.

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Oxfordshire Carers Centres

A variety of support is available to carers through the Oxfordshire Carers Centres. The Carers Centres support people who are caring for people with all different sorts of disabilities. Support includes:

• Support Workers
• Young Carers Projects
• Help with Form Filling
• Training Courses
• Respite Funds

More information about Carers Centre services can be found on the Carers in Oxfordshire website: www.carersoxfordshire.org.uk.

Counselling Directory for Dementia

Counselling Directory was set up to connect visitors with a wealth of information and the ability to search for the most suitable counsellor or psychotherapist. For further information, please go to Counselling for Dementia.

Public Services

Two key websites should provide Oxfordshire residents with most of the information they require relating to public services:

Direct.gov.uk is a national government web site providing comprehensive information on public services, (including benefits).

Oxfordshire.gov.uk provides key information and contact details for services throughout Oxfordshire.

Voluntary Organisations

Voluntary Organisations - this Alzheimer's Society factsheet is an extremely helpful list of many different national organisations who can provide all kinds of support and help; it includes links to their websites.

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                                                                 Last updated: 21st November  2011